CAAAANE!

CAAAANE!
Animated GIF. William Shatner as Captain Kirk screaming CANE in place of KHAN.

Monday, January 18, 2016

Access Mob Pittsburgh

Introducing my new project... Access Mob Pittsburgh!


Image: The handicap symbol in black inside a gold triangle, with "Access Mob" written on top and "Pittsburgh" underneath.
Image: The handicap symbol in black inside a gold triangle, with "Access Mob" written on top and "Pittsburgh" underneath.

Access Mob Pittsburgh promotes social advancement through positive change.

The Americans with Disabilities Act is a complaint-driven law that requires individuals with disabilities to sue businesses in order to be granted basic civil rights and gives the public a negative image of people with visible differences. The goals of the Access Mob are to bring communities together to advocate for change through positive measures.

In the spirit of Flash Mobs, this is a space for discussion and organization of Accessibility Mobs. Accessibility Mobs can be (but are not limited to) any one of the following:

* Organizing groups to canvass neighborhoods to do censuses of sidewalks, intersections, and cut curbs in residential areas and business districts.

* Organizing groups to canvass business and retail areas to evaluate the level of accessibility individual businesses according to ADA and ABA standards.

* Ramp Crawls, Shopping Crawls, and related activities to reward businesses who are ADA compliant, to show the collective buying power or people with disabilities, and to demonstrate to a range of businesses that yes, people who are disabled like going out to night clubs and fancy restaurants.

* "Un-Protests" - Approaching businesses that are not accessible and expressing to them that people with disabilities want to spend money there, and that people who are currently fully-abled want to continue patronizing should they become disabled in the future. 



Join our Meetup by clicking here and our Facebook group by clicking here!

Sunday, January 17, 2016

I'm Back!

Hello, internet!

I'm back and ready to update my blog after far too long an absence. Apart from the holidays being wonderful and fun and family-filled and not a time to write, my laptop pretty much died on me. But my cousin Rich went all Frankenstein on it, so now I have a somewhat quirky but overall functional computer again. Woohoo!

Friday, October 30, 2015

Thursday Night Lights

Patricia V left a comment on my post about my walker:

I would love to know HOW you add the lights. Where did you get them? Are they battery powered? I want to add lights to my walker but don't know how! Thanks.

Here's a quick video I whipped up on my lights, since it felt like showing was easier and quicker than writing:


As for where I got my lights, I've gotten most of mine from either Amazon or Target. Most Targets have a section in the back year-round with Christmas lights and some of these are cute and battery-operated. Otherwise I've spent many an hour on Amazon looking up "battery string lights" and similar searches, and I have a range of things for various times of year. These are the lights I have on the lower bar year-round so I can be visible while crossing streets at nights. These are what I had on for the spring and early summer. These are what I have on now.

One recommendation I would give is to get a ziplock baggie and put the battery pack in there - I've had the wonderful experience of a set of lights getting rained on and the whole thing shorting out and melting.

I hope you found this helpful! I'd love to see photos of what you do with your walker!

Tuesday, October 6, 2015

Access Mob Pittsburgh's First AXS Map Mapathon!


Image: Two lines of texts. First line reads: "A X S MAP," followed by an icon of a person using a wheelchair. Second line reads: "Building landscapes to accommodate the world."


The purpose of the mapathon is to generate data for AXS Map, a valuable tool for people with physical limitations to determine whether or not they can patronize certain businesses. Currently there are only a limited number of restaurants, retail stores, academic and cultural institutions, and other places of business that have been rated within the City of Pittsburgh and its surrounding areas.

We will be starting at 10 AM on Saturday, October 24, in the center vaulted section of the Cathedral of Learning's main floor - look for the sign! From there groups will be assigned to different neighbourhoods to begin mapping.

Before coming, all attendees should watch the videos on the AXS Map website that instruct people on how to perform ratings.

Mappers are encouraged to dress in layers and wear comfortable shoes. If possible, teams should include at least one driver; some neighbourhood areas will be reserved for people going by bus or by foot.

When finished with their respective neighbourhoods, teams are encouraged to go out on their own to find new places to rate, and when everyone is done for the day participants are encouraged to go and spend money at one of the places they've given a high rating to, as a thanks to those businesses.

People of all ages and levels of ability are invited! However, we do require that anyone under the age of 17 be accompanied by a legal guardian.

To join the Access Mob on Facebook, click here.

To invite your friends via the Facebook event, click here.

Wednesday, September 16, 2015

Alisa and the Wonderful, Fabulous, So Good, Very Rad Day

I had the best concert experience a couple of months ago.

If it hasn’t become abundantly clear yet, I love Dave Matthews Band, and this year I had the wonderful opportunity to travel to Raleigh and stay with my best friend from grad school and her family the week DMB was playing at Walnut Creek. And this concert was nothing short of magical.

I should mention first that people in the South are just plain nice. Everyone smiles and is courteous and makes sure you’re having a great day, and as a native Manhattanite used to a general air of menacing disinterest from passers-by this is a truly amazing experience. I often feel very awkward when I have my walker and people go out of their way to hold the door for me because it reminds me of yet another way I can’t function the way I used to, but in the South they do it because it’s what they do for everyone. Because it’s a nice thing to do. Seriously. They’re that nice.

I don’t know if it’s because it’s in the South where people are nice or if some awesome person cared enough to do something, but Walnut Creek Amphitheatre has an amazing setup for people with accessibility needs. At the main entrance there was a golf cart ready to drive people down to the seating area rather than making us walk. A lovely lady passing by even stopped to help load on my walker because, as she told me, her nan uses a walker and she hopes that people offer to help her out like that. The ADA section was set perfectly at the ledge over a walkway that went a good 5’ below so that everyone could see the stage at all times without standing up. I made concert friends with the woman next to me (who also uses a walker – yay, having someone my age to talk to about walker issues!) and her husband, as well as the pleasantly amusingly drunk woman to my left. Then the concert began.

At the beginning of the second set my seatmates encouraged me to leave my muticoloured flower lights (which I had used to plow through the crowds so I could get to the bathroom in one piece) on for the rest of the show. Despite feeling rather self-conscious, I let them shine for all to see. And apparently they were visible, as toward the end of the main concert a gentleman waved from the walkway below to get my attention, then handed me a piece of paper.

It was the set list.

For those of you who don’t understand how absolutely amazing this is… They probably print two copies of the thing, and after concert fans will fight tooth and nail to get to the roadies who are cleaning up and see if they can get one of the lists. But here I was, being handed what in many fans’ eyes would be considered the Holy Grail.

I would like to say that I handled myself with utmost decorum. I would love to say that I politely thanked the man, tucked it away, and spent the rest of the show quietly enjoying myself. But then I’d not just be telling a slight mistruth, I’d be lying out my ass. After a moment of dumbfounded shock, I started screaming “HOLY SHIT! IT’S THE SET LIST! I GOT THE SET LIST!” At high volume. Repeatedly.

After a moment I motioned to the bemused man to come up so I could give him the biggest hug. After he’d regained all of the breath I’d squeezed out of him, he told me that he was Boyd Tinsley’s vocal coach, and he’d wanted me to have the set list because he’d seen me rocking out from all the way up there on the stage. I bounced around uncontrollably for a moment out of excitement because I am a tremendous fan of Boyd Tinsley (to the point of trying to always have seats on his side of the stage so I can watch him play). After the giddy bouncing subsided I asked the lovely gentleman for a favour and told him my sad, sad story of woe from last summer.

*cue magical mystical music that always implies a flashback in cheesy sitcoms*

Last summer my then-roommate and I had front-row tickets to see DMB when they came to Pittsburgh. That’s right, front row, directly behind the pit, less than 30 feet away from where Boyd always stands. It was amazing. At the end when Carter was throwing out drumsticks I started waving my cane so he’d see me and throw me a stick. Which he did, or at least he tried. He pointed at me, then tossed a drumstick which I would have caught had I not been knocked to the ground by two college-aged girls from the seats behind us in their attempt to get the sticks. While they gloated about how they’d been able to catch drumsticks two nights in a row, I was being helped up by a couple of guys who’d actually jumped over the barrier from the pit to help me out. And as if that wasn’t bad enough, I got banged up badly enough from their slamming into me that at the end of the night I had to be pushed out of the venue in a wheelchair. Since then I’d been trying unsuccessfully to get a stick thrown my way again so I could at least get a fighting chance at snagging one without worrying about breaking a bone…

I told Boyd’s coach all this, and asked if he could have Carter throw one my way. I didn’t need to catch it, I just wanted the opportunity to try. He laughed and said he couldn’t make any promises, but he would try his best.

For the rest of the concert I sat quietly and enjoyed myself bounced around in my chair and checked on my set list just to make sure it was real, smugly superior in the knowledge of what the encore was going to be, a fact no one else in the entire 20,000+ person audience knew. And at the very end of the encore, Carter did his thing, waving at fans, shaking hands, tossing out drumsticks to those who were fairly close to the stage.

Then he pointed at me, and made a motion that as a rabid football fan I easily interpreted to mean “Go long!”

And he hurled it.

Time stood still as this yellow drumstick, this golden prize, came flying at me, arcing high over the crowd. There was nobody behind me to knock me down! Everybody knew it was heading for me! MY TIME HAD FINALLY COME! Flying, flying, flying…

And it missed me and fell three feet short of my arm’s reach into the walkway below.

Have I mentioned yet how gosh darn nice people are in the South? Had this happened here, someone would have grabbed that stick and run. But not so in Raleigh! A man who’d seen the whole thing and knew that drumstick was intended for me ran over, grabbed it, and… handed it up to me.

I feel like I just wrote the script to some sappy feel-good movie, because life never has a happy ending like that, but I guess that’s the South for you. In any case, after bouncing and screaming and acting like a caffeinated two-year-old, I very carefully cradled that drumstick in my hands from Raleigh to DC to Pittsburgh. The drumstick, set list, and Warehouse ticket (Holy trinity?) are now in a picture box on my living room wall, and I could not be happier.


So thank you, Walnut Creek Amphitheatre, for being welcoming to those with disabilities. Thank you, Boyd Tinsley’s vocal coach, for making a dream come true. And thank you, The South, for being pretty darn awesome.



Photograph: A 3D picture frame with a background of printed instruments. Displayed are a set list, fan club ticket, and drumstick.
My awesome picture box frame.

Photograph: The corner of an apartment. On the left wall are a picture box frame displaying a drumstick and a beer-themed DMB poster. On the right wall are a mill-themed DMB poster and a Buddha-themed DMB poster.
My little DMB corner of my house. I'm not addicted. I swear. Shut up. I can quit any time I want.


Tuesday, August 18, 2015

They're Happy Tears



As I've mentioned before on this blog, the song Grey Street by Dave Matthews Band is incredibly important to me. I think the description I put on the video is succinct enough to explain what this video is, then. I'd try to write more, but I'm tired and a bit overwhelmed from the unabashed sob I had after recording it.

Trying to play Grey Street for the first time in over a decade.

I was diagnosed with multiple sclerosis in 2001, which left me hemiplegic for a while. After about a year I'd regained a lot of the use of and feeling in my left side, though not all by any stretch. I tried to play my guitar as a desperate form of self-inflicted physical therapy, since I'd previously been quite good, but I my hand had too little use for me to do what I wanted and I hid it away in my parents' house for over a decade.

Recently I decided to bring it home with me after visiting my folks, and tonight I decided to try playing Grey Street. It's one of the easiest songs that I could remember (though I had help of my old easy fake book), and for personal reasons is a very meaningful song for me.

What you see here... It's choppy. It's slow. It's awkward. It's hesitant. And it made me so happy I started crying about five minutes later.

Friday, August 14, 2015

Review – The Independent Brewing Company, Pittsburgh, PA

Disclaimer: When I review the accessibility of any business or venue, I do so only on the basis of my own experience with my walker and cane. I don’t know enough about the experiences of other populations with specific needs such as people who are blind or deaf to comment on how accessible a place is for them, but I welcome people who do know to leave comments about their own experiences with the same location.

Last night my friend who’s a gigantic beer geek was in my area and he dragged me out to The Independent Brewing Company, on Shady & Forbes Aves in Squirrel Hill. In proper Pittsburgh fashion I’ll describe a location by what used to be there and say that it’s in the place where Fanattics <sic> used to be. You remember Fanattics, right? Gross sticky smelly smoky dirty dive bar where they still allowed smoking and didn’t believe in mopping? Yeah, that place. I’m sure you’ll understand, given my dislike of the previous establishment, why I haven’t been in there to check out the remodel under new ownership.

Fortunately I was very pleasantly surprised by the new space. The Independent Brewing Company has a very comfortable atmosphere, lived-in but clean, loud but friendly. The space is a bit cramped, though one of the owners (who happens to be my friend’s cousin) said that they are in the process of converting the adjacent business (formerly a real estate office) into a sister business featuring all of their cocktails, allowing The Independent Brewing Company to focus on its beer and hopefully spreading the crowd out a bit. I can’t speak for the food because we’d already eaten, although the menu looked delicious, but my friend vouched for their beer selection’s being pretty awesome and I loved my Arsenal cider.

From the perspective of my own mobility impairments, I think The Independent Brewing Company did a fabulous job with their space. Outside the bar is a set of outdoor tables, most of which are at bar height with stools, but there is a low-level table there for people using wheelchairs or who otherwise cannot sit at a bar. It’s not often that I’ve seen that level of consideration given to people with mobility needs and I was very excited when the owner was telling us about it.

When I got up to use the lav, I saw a step down from the front part of the bar to the indoor dining area and, behind that, the restrooms. Disappointed, I edged around the bar while pondering how best to approach the owners about the idea of putting in a ramp. I got to the second doorframe heading down to the dining area… And there was a ramp! Oh frabjous day! I was super excited to see that the owners had put some thought into making their restrooms accessible as there are far too many businesses that claim to be accessible because people with disabilities can get in who do not have bathrooms that all of their patrons can use. I cannot speak to whether the width of the door into the bathroom was ADA compliant, but I would definitely have been able to bring my walker in and have plenty of room to turn it around and maneuver.

The two negative things I can directly say about The Independent Brewing Company are that it’s a rather cramped space so making it through the crowd to get to the ramp down to the dining area and bathrooms would be difficult for someone using a larger wheelchair, and the main bar inside is entirely at a standard bar height. I didn’t think to ask if they had a braille menu, so I would recommend that anyone needing one call ahead to ask.


Overall, I would recommend The Independent Brewing Company albeit with some small bit of caution for people with disabilities. I’ll certainly be going back there in the future!